The Internal Experience of Schizophrenia

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If you do not have schizophrenia, it is probably difficult to understand the internal experience of schizophrenia. Normally, when we describe our experiences to one another, we assume there's a shared understanding of what it feels like to think and to perceive the world with our senses. We expect that we can talk about what we're thinking—without having to describe the ways in which our brains connect different pieces of sensory information and memory to make a thought.

In someone with schizophrenia, the most basic processes of perceiving and thinking are affected by the illness. Every individual with the illness will have a unique experience of the world, but there are common themes.

Symptoms of Schizophrenia

One way to try to understand what it's like to have schizophrenia is to understand the experience of each of the basic symptoms of schizophrenia. An individual’s personal and unique experience, of course, won’t be broken into these neat categories.

Depression

People who experience psychosis, which includes hallucinations and delusions, also experience true sadness or depression as well as isolation. This sadness is often a natural response to being trapped in a terrifying and isolating situation. A stunning first-person account of schizophrenia, Autobiography of a Schizophrenic Girl, describes very clearly the sadness and loneliness the young author felt when gripped by psychosis.

Delusions

To have a delusion is to be obsessed with an idea, and to have absolute certainty that the idea is correct. Your thinking may be clear in other ways, with an otherwise logical ability to reason, starting with the absolute conviction of the incorrect premise.

Delusional ideas have a lot of power to preoccupy your thoughts. Sometimes people with delusions can convince others that their delusions are true. This happens most often when the delusion is in the realm of common human experience, like an unfaithful spouse or a boss who’s “out to get me.”

Some delusions are clearly recognized as abnormal, like when someone is convinced that they’re a famous person or that their thoughts are being controlled by aliens.

Even after responding well to antipsychotic medications, you may continue to believe your delusions are true. However, you also may have developed an insight that other people think the ideas are probably delusions.

Psychologists might call this a meta-awareness of the symptom or awareness that exists above the level of the symptom itself.

Hallucinations

Hallucinations and delusions can go hand-in-hand. For example, hearing voices speaking to you from the radio is a hallucination. Being absolutely convinced that the voices are real and the things they tell you are true has a component of delusion.

It is possible to experience hallucinations while being aware that they aren’t real. As with delusions, this would require a meta-awareness of the unreality of what appears to be a real experience.

Human beings usually rely on their perceptions to tell what’s real. We’re often unaware that different people experience the same situation differently because usually, those small differences don’t come up in conversation. For example, people can go their entire lives without knowing they’re colorblind because they don’t know what they’ve never experienced.

Likewise, at a party, an outgoing person may perceive friendly, receptive faces, while a shy person may perceive the same faces as being indifferent or even critical. Both of these perceptions are within the realm of normal human experience, and neither is pathological.

Hallucinations

  • Hearing (auditory hallucinations) or seeing (visual hallucinations) something that is not there. 

Delusions

  • Being absolutely convinced that the auditory or visual hallucinations are real.

If you have schizophrenia, however, you may actually hear people saying things that are critical or insulting when those conversations aren’t really taking place. That would be a type of auditory hallucination.

Visual hallucinations can take many forms as well. A person with schizophrenia may find their attention drawn to one particular person’s face, notice that the teeth are very white, and then perceive the mouth and teeth growing to fill the room.

This perceptual distortion would feel like a real visual perception, and the person may believe it's actually occurring. If they're frightened by the perception, they might try to hide their fear, or cry out or run away.

Some people have persistent visual hallucinations, such as small children or animals that frequently appear or follow them around. They may even hold open doors for these hallucinations to pass through when they leave a room.

Disorganized Speech or Behavior

The process that disrupts the normal operations of the brain also disrupts the process by which the brain monitors its own operation. To use an analogy, a psychotic brain can’t troubleshoot its own errors because the troubleshooting tools are malfunctioning too.

People experiencing disorganized speech are often aware that their thoughts and words aren’t communicating the things they intend. However, they typically don’t understand why.

They may earnestly try to communicate their thoughts in nonsensical, stream-of-consciousness language, and become frustrated when the other person doesn’t understand or the words aren’t coming out right. On the other hand, they may seem to be unaware that the listener doesn’t understand them.

There are many kinds of disorganized behavior, and people are usually unaware of these motions and believe the behavior is entirely reasonable. A few examples:

  • Moving their empty hands as if they’re knitting
  • Making an apparently meaningless hand gesture or body posture
  • Remove clothing in an inappropriate place.

Disorganized public behaviors often result in contact with the law. More and more legal jurisdictions are recognizing mental illness and referring people for psychiatric evaluation. However, there are still far too many mentally ill people in jails and even prisons for nothing more than disruptive, disorganized behavior.

People without schizophrenia also perform bizarre and socially unusual behaviors. Otherwise, relatively healthy people might take off their clothes at a football game, start a pillow fight in a public square, or wear a bizarre dress. The difference is that these people are aware that the behavior is unusual and are looking for the attention they attract.

Negative Symptoms

People with schizophrenia have a particularly difficult time recognizing negative symptoms as being symptoms of an illness or even abnormal. In this way, the experience can be like that of certain kinds of depression.

The person doesn’t express emotions or expresses them only mildly, even when confronted angrily or in a dangerous situation. The person may also fail to find significant pleasure in things that were once delightful, called anhedonia.

If you're experiencing negative symptoms, you have little energy or motivation, and your mental energy and acuity are often also depressed. Because the mind itself feels fuzzy or dull, there’s little perception that it’s possible to feel differently and little memory of a time when you felt differently. Many people who have experienced depression will understand this feeling of being in a mental fog.

Real People, Real Emotions

Samuel Keith, MD, editor of the America Journal of Psychiatry, expressed the plight of a person with schizophrenia very well:

"Real people with real feelings get schizophrenia. One should never underestimate the depth of their pain, even though the illness itself may diminish their ability to convey it….As one of my own patients told me, 'Whatever this is that I have, I feel like I’m a caterpillar in a cocoon, and I’m never going to get the chance to be a butterfly.'”

Treatment

Schizophrenia is a progressive illness and treatment with antipsychotic medications along with therapy can stop or slow the progression of the disease.

Schizophrenia Discussion Guide

Get our printable guide to help you ask the right questions at your next doctor's appointment.

Mind Doc Guide

Diagnosis and treatment with antipsychotic medications early in the illness, optimally within the first six months of symptoms, have the greatest potential to reduce the severity of a person’s illness for the rest of that person’s life. It is absolutely essential for people to get help, and insist on an evaluation by a psychiatrist when psychotic symptoms occur.

While it is not a treatment per se, family support is also an important part of coping with schizophrenia. Supporting a loved one with schizophrenia means more than just learning about symptoms and treatment; it's about understanding what it's really like to live with these symptoms day in and day out. This way, you can you give your loved one the empathy and support he or she needs to better manage the illness.

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Article Sources

  1. Keith S. Understanding the Experience of Schizophrenia. American Journal of Psychiatry. November 1993;150(11):1616-1617.

  2. Koreen AR, Siris SG, Chakos M, Alvir J, Mayerhoff D, Lieberman J. Depression in first-episode schizophrenia. Am J Psychiatry. 1993;150(11):1643-8. DOI: 10.1176/ajp.150.11.1643

  3. Harvard School of Medicine, Harvard Health, The negative symptoms of schizophrenia


  4. Kring AM, Caponigro JM. Emotion in Schizophrenia: Where Feeling Meets Thinking. Curr Dir Psychol Sci. 2010;19(4):255-259. doi: 10.1177/0963721410377599